Georgette Drake and Georgeanne Bishop pose with portraits they created of Lacie Wallace.Narrative Medicine: Using Patients’ Life Stories to Promote Healing Laura Jackson Roberts March 16, 2019 Cancer is a fact of life. We all know someone who’s fought it, and most of us know people who have both won and lost that battle. Cancer changes lives. It has a way of clearing away cobwebs and refocusing priorities. It shines a light on what’s important. To that end, in March and April, Oglebay Institute’s Stifel Fine Arts Center will present a lecture series in conjunction with “The Art of Healing” exhibit, which will explore the role of art in the cancer patient’s journey. RENÉE NICHOLSON One of the guest lecturers will be Renée Nicholson, a professor in the multidisciplinary studies program at West Virginia University. Though she was trained in classical ballet, Nicholson was diagnosed with rheumatoid arthritis at an early age. She had to make a career change, so she obtained a graduate degree in creative writing. While she was teaching, a physician who wanted to help an ALS patient write a memoir contacted her. The patient lacked the motor function to do it himself. Nicholson was intrigued by the idea, as was the medical community at WVU. After some research, they learned of a program called Narrative Medicine, in which medical teams — from doctors and nurses to therapists and rehabilitators — use a patient’s narrative, or story, to facilitate treatment and promote healing. Nicholson and Dr. Carl Grey of WVU began a clinical trial using narrative medicine with patients in chemotherapy. It started as a way to help palliative patients develop their advance care directives. Patients often cannot speak for themselves when the time comes to make decisions; hearing and understanding their stories helps both family and medical teams understand their wishes. Nicholson and Grey also believed storytelling would help with patients’ quality of life. As a writer, Nicholson’s job was to hear and transcribe these stories. “I would go in and sit with patients and take them through some guided prompts,” she said. “I never asked them about their disease, just about what they felt their story was.” She worked with more than 60 patients during the two-year study. In addition to training others in the technique, she developed a course in the Honors College called “Medicine in the Arts,” for pre-med students. Nicholson believes it’s important to teach narrative medicine to future practitioners, and the study intrigued many other medical professionals at WVU. THE ART OF STORYTELLING Nicholson said that each patient was different and unique, not only in their diagnosis and prognosis, but also in the way they told their stories. Some were ebullient; others spoke quietly, with reserve. She took cues from the oncology nurses, who often matched their mannerisms and speaking style to the patient they were attending to. She found this helped to forge a connection with the storyteller. What stood out to Nicholson? She said that patients often spoke about food. Chemotherapy changes the way things taste, and so it also alters the way they remember food. She heard lots of fried chicken recipes. She also discovered that most patients spoke proudly about their life’s work. “Our No. 1 theme that people talked about was the work they did in their lives,” she said. “There’s so much pride and dignity in what they did.” Nicholson said that West Virginia featured in many stories, as well. “Most of the patients were from West Virginia,” she said. “I felt like I got the story of my state and the story of this place and this region. I got these roots stories. So many people talked about their connection to the land, their mountain, their woods, their farms. I felt like … I really understand this place where I live so much better.” A PORTRAIT OF THE ARTIST IN WHEELING, W.VA. Because this was a clinical study, Nicholson couldn’t tell the patients’ stories publicly. One Wheeling woman, however, wanted to share. Lacie Wallace was a multimedia artist, a sitting model for other artists, and a mom of two. She was the 20th patient in the narrative medicine study. Right away, Nicholson knew Lacie was unique. “She was dressed to the nines every time she came in,” Nicholson said. While most patients arrived for their infusions in comfortable clothing, Lacie wore dresses, makeup and jewelry. She played the ukulele and worked on art projects during the times she was admitted to the hospital. LACIE WALLACE Nicholson said she knew she was in the presence of an amazing artist: “[Lacie’s] art just dropped my jaw. It was amazing and beautiful and vibrant. I knew I was looking at something pretty extraordinary.” Lacie created interactive art and wanted people to be able to touch it in a hands-on experience. “I knew this woman had this extraordinary talent,” Nicholson said. “Lacie wanted to see her art out there. She wanted to be known.” So Nicholson arranged for Lacie’s work to be featured at WVU’s Health Science Center Library in an exhibit she titled “Bodies of Truth: An Artist’s Creative Exploration through Cancer.” The event meant so much to Lacie. “She was really excited because one of the things that Lacie was worried about was that people would never get a chance to experience her art and that she would be forgotten or never known,” Nicholson remembered. Lacie said the act of creating art made her feel better, like herself in spite of the cancer. She was still collaging and making amazing pieces from her hospital bed. It was a lesson not only for Nicholson, but also for the oncology team that worked with Lacie. Subscribe to Weelunk “I got to see how art can really be healing,” Nicholson said. “It has the ability to bring people together. She just had that way of connecting with people. I’m so happy we were able to have her exhibit. The students really connected with her artwork.” Others did too. The show was attended by a rich mix of people including students from many disciplines, numerous doctors and nurses, and professionals who had worked with Lacie. Lacie passed away in 2017, but her art lives on. “It helped us understand the journey she went through,” Nicholson said. “And I don’t know that I’ll ever have an experience quite like that in my life again. All the way until the end she was just a light. You felt it when you were in her presence. All of the patients leave something with me. They all touch me.” Georgette Drake and Georgeanne Bishop pose with portraits they created of Lacie Wallace when she modeled for the Independent Artists Group at the Stifel Fine Arts Center. (Artwork on the easel is “Lacie — A Woman’s Life Remembered” by Bishop.) The IAG will hold an auction of their works Thursday, April 18. Proceeds support the education funds of Wallace’s two daughters. THE TAKEAWAY Columbia University’s own Narrative Medicine program states that the care of the sick unfolds in stories. Nicholson agrees. Her experience with the study taught her the power of story. She’s learned to move past her own ego. Writers, in particular, often find themselves consumed by their work, exposing their vulnerability on the page. But after hearing the stories in the Narrative Medicine study, Nicholson has realized the depth of true vulnerability. She found it in the infusion patients and in their stories. And therein lies the irony: vulnerability and true openness come when we face tremendous loss. “The great tragedy of life is that it ends,” she said. “It also makes it valuable.” Cancer can strike anyone. Nicholson has faced it in her own family, as most people have. But the power of these stories helps to ease the struggle, if only for a moment. She’s glad to be a part of that healing. “Cancer is indiscriminate,” she said. “It leaves a hole, and that’s something that anyone who’s been touched by cancer understands. I hope that having these stories can leave one little piece of connection. You can come back and read and hear your loved one’s voice again on the page. If they do that, in my book it’s all been worth it.” LEARN MORE ABOUT NICHOLSON’S WORK Nicholson will discuss her work with Narrative Medicine and share her experiences working with Lacie Wallace during a public program at 6:30 p.m. Thursday, March 21, at the Stifel Fine Arts Center. The program is free and open to the public. Light refreshments will be served beginning at 6 p.m. Reservations are requested and can be made by calling 304-242-7700 or logging on here. “THE ART OF HEALING EXHIBIT” LECTURE SERIES “The Art of Healing” is a multi-media exhibit and lecture series taking place at Oglebay Institute’s Stifel Fine Arts Center. The exhibit includes drawing, painting, photography, sculpture and written word from artists throughout the United States and explores various ways art can be used in the healing process. The lecture series provides resources and social support for those affected by cancer. Special guests include artists featured in “The Art of Healing” exhibit, oncology experts, social workers, art therapists and cancer patients and their families. “The Art of Healing” continues through April 19. All programs are free and open to the public. • Laura Jackson Roberts is a freelance writer in Wheeling, W.Va. She holds an MFA in Creative Writing from Chatham University and writes about nature and the environment. Her work has recently appeared in Brain, Child Magazine, Vandaleer, Animal, Matador Network, Defenestration, The Higgs Weldon and the Erma Bombeck humor site. Laura is the Northern Panhandle representative for West Virginia Writers, a blog editor for Literary Mama Magazine and a member of Ohio Valley Writers. She recently finished her first book of humor. Laura lives in Wheeling with her husband and their sons. Visit her online at www.laurajacksonroberts.com. Share this:Click to share on Facebook (Opens in new window)Click to share on Twitter (Opens in new window)Click to share on Reddit (Opens in new window)Click to share on Pinterest (Opens in new window)Click to share on LinkedIn (Opens in new window)Click to share on Pocket (Opens in new window) Leave a Reply Cancel ReplyYou must be logged in to post a comment.